In the framework of the International Week for Rare Diseases (28 February- 2 March), Amimoni, represented by its President Mrs. Paraskeyi Bellou and the Head of the Early Intervention Program, Agapi Papadaki, was present in the event which took place in the European Parliament, with the title “Time to act: Building a pharmaceutical framework fit for rare diseases”. The event was hosted by Member of European Parliament Mr. Stelios Kympouropoulos. Representatives of patients with rare diseases from Greece and Europe, as well as representatives of the European Commission and the pharmaceutical industry attended the event.
